It’s cutting through my Aldi ski hoodie - and I’m wearing 2 pairs of pants and it’s too cold. At least we could get some rain to water the garden - it’s been missing my place, but got all the wind as I’m on the top of a hill.

Same. I’m ND so the sensory hell of noise and touch and cold has been really really crap this last week. Makes me irrationally angry.

I did not know that either. And all that effort into psyching yourself up, gone to waste. I hear you on that, it’s hard to get there.

Shout out to anyone having a shitty day today due to the “family” issues or loss. It’s been hard to avoid.

And people looking in at you because it’s a glass window shop front

My dog loves cucumber. But goes crazy for big meaty bones. Lettuce and celery result in a dog equivalent of a death stare. I’m sure he would throw them back at me if he could 😂

NDIS application is starting. My doc says it’s really difficult to get approved but we will try anyway. I’m still working full time so dsp isn’t a thing and I want to keep working and feel like a normal person. Just need some help and ideally work to stop forcing mandatory office days and actually be inclusive instead of just pretending to. Sucks being bedridden so much.

It’s always the tea spoons. When I used to have a desk, I’d leave a cup and bowl and tea spoon from home in the drawers. Now it’s hot desking …

This week’s shit weather is brought to you by my annual leave. Not. Happy. Jan.

Have asked and this is where im at - go to work unwell or find another job. They changed the rules after I started working there.

I know that- they created a business requirement so now wfh doesn’t meet their job role requirements, so now you’re fired or going into work unwell.

Did that to reduce to 1 day a week. But it doesn’t help during flare ups, at which point they want detailed medical info each time and end dates /durations/return to work plans . It doesn’t work like that unfortunately.

I just want to be productive and work - but at home so I can deal with my symptoms as needed and not be on public display. Plus the exertion of travel and being in an office all day. Sigh.

Looked at ndis as I need help with disability. The sheer amount of doctors letters, assessments etc required is going to be insane, stressful and probably costly into the thousands. Then there’s the long wait times (over 6 months to get a response) Hardly accessible. Im struggling so hard to stay employed - wfh was so great for disabled people and now the return to office mandates has my job being threatened. It has no actual physical requirement (tech) but they insist that going into the office for “connection” with the internal team (who is across multiple states anyway ) is a “mandatory business requirement”.

Fucking joke at the expense of my health declining even further.

I would totally read those

Hugs. That’s awful.

Anyone involved in support groups for chronic illness /pain? I have zero support group but feel validated seeing posts on instagram that mirror my experience.

I was overwhelmed by cringe and couldn’t watch the whole thing.

Wow that’s dedication on a cold Sunday morning

Why do you say that?

Doing my best to avoid it so far. Not much of a life but can’t risk it unfortunately. Hope you get better quickly op.