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ME/CFS @lemmy.blahaj.zone

FundMECFS @lemmy.blahaj.zone

4mo ago

Ignored, blamed, and sometimes left to die – a leading expert in ME explains the origins of a modern medical scandal

theconversation.com Ignored, blamed, and sometimes left to die – a leading expert in ME explains the origins of a modern medical scandal

The co-lead of the world’s largest ever genetic study into ME calls for a radical change in how society deals with the disease.

3 comments

I wouldn’t suggest anyone who’s still struggling with accepting their ME to read this article because it’s very focused on the bleak aspects. Anyone that doesn’t have ME should read it though.
My evening is definitely ruined after reading the first half (I couldn’t finish it).
- I wouldn’t suggest anyone who’s still struggling with accepting their ME to read this article because it’s very focused on the bleak aspects.
  Sadly, I'm not sure that human society will change without challenging the bleak aspects. This is a lot to ask for an individual.
  
  Which is why people without ME should read it. I don’t know if you know anything about ME (if not then why haven’t you read the article?) but even reading an article like that can literally make someone with ME sick for a day or a week because of the emotional energy it costs to process it.