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AshenWolf [she/her, kit/kit's] @hexbear.net

Disabled Community Megathread from May 12, 2025 to May 25, 2025

Hello all! All I have to say for now is that the megas must flow

As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:

"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.

Mask up, love one another, and stay alive for one more week.

83 comments

  • Still trapped indoors. We've checked if either one of us would be eligible for any kind of grant to help the situation, but it doesn't look like it. Neither one of us can get a loan (I have a maxxed out OD and no income, my landlady has a maxxed out credit card and is on a fixed pension, no-one will lend to us). The situation is becoming ever more urgent. Don't know what else to try. If I was able bodied it wouldn't be a big deal, but I can barely walk, and neither can my landlady, she's nearly 80 and needs a knee replacement.

  • My landlady's car needs new brake pads and discs. Quoted at £400 and neither of us have any money. It's undrivable. With the mobility issues from my stroke, the fact that I'm still recovering from foot surgery, inflamed tendon and the fact that the nearest bus stop is over half a mile away anyway, I am now literally trapped indoors until we can raise the money for the car repairs. I thought my life sucked before, but now I am an actual prisoner, can't even get to medical appointments, landlady can't go and buy food or pick up our prescriptions. Just when I think things can't get much worse, they do. I hate being disabled!

  • CW: digestive issues, surgery, female reproductive crap, ER (Emergency Room)/hospital

    I kinda feel like death lately. I had abdominal surgery to help with my digestive issues and weeks later into recovery, I now have an infection in my intenstines. The pain was so bad I thought there was something wrong with my ovaries or uterus (that's where my most painful pain comes from, but turns out they are mostly fine but inflamed as well for some reason). Since I've had chronic pain for most of my life, it was so hard to wait in a chair in the ER when it is too painful to sit and then much later on standing at the pharmacy for my meds when my legs were never able to stand for too long before all of this. I hate going to the ER so goddamn much and the pharmacy really should have chairs at least. The antibiotic I'm on is causing so much digestive issues (which I was warned about at least), I feel nasueous a lot and easily bloated by small amounts of food. I'll spare you the details about my diarrhea. My stomach is constantly rumbly even as I type this. I am not going to die from this but I feel terrible.

  • This might sound mad and weird but I think I might be having a migraine in my bum. Some weeks ago I had a weird feeling in my crotch, numbness, tingling and a menthol feeling. It eventually spread all down my right side and turned out to be a hemiplegic migraine. Well now I have a weird feeling in my buttocks, tingly and burning. There's no sign of an allergic reaction, nothing to see at all. Also it's now spreading into my face. Is this another weird migraine or is there actually something wrong with my bum?

  • I smoked the weed that lets your ADHD disappear and allows you to spend an hour and a half cleaning the house. Hell yeah

  • The day before my final undergrad exam ever is a very bad time for my brain to kick into extreme executive dysfunction . And yet here we are. My energy level is so messed up, I keep going between to lethargic to move and too energetic to sit still

  • I had the unfortunate pleasure of meeting Big Pharma's New Golden Goose today. Or rather, it's the plantinum goose, insulin is still the golden goose. As it turns out, ozempic makes a lot more profit for Big Pharma. A relevant, yet minor detail is that ozempic and insulin share some chemicals. While ozempic is not necessary for survival for a large group of people on this planet, insulin very much is. Chemically produced insulin has been modified so much since its inception that it is, at this point, possible to develop allergic reaction to some of of them. Guess who has had an allergic reaction to quite a few insulins over the years? Exactly. Now, guess next which insulin I have no allergic reaction to? Yes, the one that is produced by the company that makes ozempic and is currently churning it out in gallons. And to conclude, guess now which group of people has to conserve insulin for a few months not because of the prices (alone) but also because their survival is not as lucrative as some people wanting to take almost the same chemicals to lose weight? Exactly, diabetics like me.

    This shouldn't be this way. I don't mind people having access to ozempic, nor do I mind them using it to lose weight. What I do mind tho is that profit made with this drug is evidently more important than keeping people alive that really don't have to die anymore in a "modern" society. Nobody needs to die of diabetes anymore, heck, nobody has to go blind because of diabetes anymore, nor do they have to lose limbs from this shitty disease. There's enough medical expertise, medication and care to go around and save everyone from long term follow-up diseases. But no, again, profit is more relevant than anything else.

    • This is appalling. Just when I think I can't be shocked any more. Sorry you have to deal with this shit. Depending on medication for survival is awful enough already. I can't imagine the stress of having to pay for it too. This world is sick.

      • Thank you sweetie, I appreciate it

        The good news, after a couple of hours of calling different pharmacies, I finally found one that could actually get their hands on one last package of insulin. So I'm set for some time. Let's hope that by mid-June, the company will keep their promise of restocking their insulin reserves. Or alternatively, just fucking produce more of the substances.

  • Well, someone here helped me to join dignitas. Finally dignitas spoke to me about discounts (they won't discuss potential assisted suicide unless you're a member) and..... it's not going to work for me. The thing is, it turns out they do give big discounts to people on low incomes, you provide your proof and if you have no income/no disposable income they say they will even do it totally for free. The problem with that is you have to pay for your own travel and accommodations.

    You have to travel to Switzerland for multiple interviews with doctors who will decide whether to help you or not. So the costs for this would be: taxi to train station, train to airport (potentially very expensive), airport shuttle bus, plane ticket, transport from Swiss airport, hotels, food etc. And depending how far apart your interviews are, you might need to stay in Switzerland for a while, and it's an expensive country. Depending on how long you have to wait between being accepted and doing the deed, you might need to go back home and return to Switzerland for the actual suicide, meaning paying all these costs again. If you stay in Switzerland while you wait, you then have to pay hotels, food and whatever for that whole time. Dignitas don't pay for this, you have to pay yourself. But with what income?

    If you have enough money to pay for all this then you have too much for a free suicide, surely? In which case you have to pay the £15K cost of the suicide yourself. So yeah, it won't be happening for me unless some miracle happens in the future and I come into a lot of money. I'll have to struggle on for the foreseeable future.

    • Oh friend, I'm so heartbroken to read this. The fact that it hinges on the travel costs is absurd, at the same time, I really don't want anyone to have to consider this option. I get it, I really do, but the thought of someone being in such a bad place that death seems the only bearable option is terrifying. I know you're doing all you can, I know that the help you get is not enough, but it still scares me to think that you would... leave.

      I will not tell you what to do, and since the travel cost is so expensive, there's literally nothing to do but suffer on rn regardless. I'm so sorry it is this way, and I wish I could give you a hug and find a way to make it better.

      • Having you as a friend does make it a bit better.

        .

        I never expected it to come together really, I mean I had no idea Dignitas even offer a totally free service. I had heard they do discounts but I thought it would be something like 20% off, so out of reach anyway. I was so surprised to be told they could do it free, but then they added at the end of the message that the entire travel costs and hotels would be on me, they don't help with that. If only I could get my benefits awarded for the full maximum 10 years, I could maybe save a bit, but in that case I might have to pay the full cost and I don't think I could save that much. Life is just a neverending obstacle course, there is always something in the way.

        And my achilles tendon is getting worse, not better and I'm really trapped by it and worried about how long it will take to improve. Because of my leg and foot issues I've been basically imprisoned for months and into the foreseeable future, it's really not helpful to my mental health.

  • I am in a local neighborhood discord group and someone needed a medical device as insurance was taking too long. I was trying to set them up with someone who I know is very knowledgeable at getting free loaned devices until insurance comes through and has come through in the past for me and others. I provided their email and telephone number and spoke with them letting them know what this person needed. I thought I was being helpful until I got scolded by the group and the person asking for help for not providing "material support", giving useless resources that go no where, and not understanding what disabled folks go through.

    I'm disabled.

    I think they were just frustrated at the shitty system we live under, but god damn it did not feel good to get eaten alive by the group.

  • call disability office

    "leave voicemail and we'll get back to you within 1 business day"

    leave voicemail

    ghosted for 3 days

    what the hell

    • I swear, there's very funky rules around what certain offices see as "business days", and most of them make zero to no sense. At my uni, for one office, a business day meant that after 8 hours of work, a business day was complete, even if said business day dragged out over two weeks. The office next to this one counted a regular day as a business day.

  • ugh i have a real upper limit when it comes to how much i can learn in one day. only so much information can enter my brain before i get a headache, and that amount of information is not that much. and in ireland adhd meds are extremely controlled so i would have to pay a very expensive psychologist to get on them. for fucks sake

  • ugh i have a real upper limit when it comes to how much i can learn in one day. only so much information can enter my brain before i get a headache, and that amount of information is not that much.

83 comments